Original Research

Published on 12 May 2020

Public Attitudes Toward Precision Medicine: A Nationwide Survey on Developing a National Cohort Program for Citizen Participation in the Republic of Korea

in ELSI in Science and Genetics

Hannah Kim
Hye Ryun Kim
Sumin Kim
Eugene Kim
So Yoon Kim
Hyun-Young Park

Frontiers in Genetics

doi 10.3389/fgene.2020.00283

3,226 views
7 citations

Perspective

Published on 08 May 2020

How Can We Not Waste Legacy Genomic Research Data?

in ELSI in Science and Genetics

Susan E. Wallace
Emily Kirby
Bartha Maria Knoppers

Frontiers in Genetics

doi 10.3389/fgene.2020.00446

2,790 views
10 citations

Original Research

Published on 07 May 2020

Causal Attributions in an Australian Aboriginal Family With Marfan Syndrome: A Qualitative Study

in ELSI in Science and Genetics

Aideen M. McInerney-Leo
Jennifer West
Bettina Meiser
Malcolm West
Matthew A. Brown
Emma Duncan

Frontiers in Genetics

doi 10.3389/fgene.2020.00461

3,812 views
1 citation

Original Research

Published on 06 May 2020

Genomic Sequencing Capacity, Data Retention, and Personal Access to Raw Data in Europe

in ELSI in Science and Genetics

Shaman Narayanasamy
Varvara Markina
Adrian Thorogood
Adriana Blazkova
Mahsa Shabani
Bartha M. Knoppers
Barbara Prainsack
Robert Koesters

Frontiers in Genetics

doi 10.3389/fgene.2020.00303

11,705 views
7 citations

Original Research

Published on 28 Apr 2020

Genetic Privacy and Data Protection: A Review of Chinese Direct-to-Consumer Genetic Test Services

in ELSI in Science and Genetics

Li Du
Meng Wang

Frontiers in Genetics

doi 10.3389/fgene.2020.00416

9,169 views
8 citations

Original Research

Published on 19 Mar 2020

German and Italian Users of Web-Accessed Genetic Data: Attitudes on Personal Utility and Personal Sharing Preferences. Results of a Comparative Survey (n=192)

in ELSI in Science and Genetics

Sabine Wöhlke
Manuel Schaper
Serena Oliveri
Ilaria Cutica
Francesca Spinella
Gabriella Pravettoni
Daniela Steinberger
Silke Schicktanz

Frontiers in Genetics

doi 10.3389/fgene.2020.00102

3,514 views
8 citations

Original Research

Published on 06 Mar 2020

Pioneering Informed Consent for Return of Research Results to Breast Cancer Patients Facing Barriers to Implementation of Genomic Medicine: The Kenyan BRCA1/2 Testing Experience Using Whole Exome Sequencing

in ELSI in Science and Genetics

Rispah Torrorey-Sawe
Nicole van der Merwe
Simeon Kipkoech Mining
Maritha J. Kotze

Frontiers in Genetics

doi 10.3389/fgene.2020.00170

4,909 views
12 citations

Methods

Published on 03 Mar 2020

Development of an Evidence-Based, Theory-Informed National Survey of Physician Preparedness for Genomic Medicine and Preferences for Genomics Continuing Education

in ELSI in Science and Genetics

Belinda J. McClaren
Emily A. King
Erin Crellin
Clara Gaff
Sylvia A. Metcalfe
Amy Nisselle

Frontiers in Genetics

doi 10.3389/fgene.2020.00059

7,125 views
20 citations

Original Research

Published on 03 Mar 2020

Preparing Medical Specialists for Genomic Medicine: Continuing Education Should Include Opportunities for Experiential Learning

in ELSI in Science and Genetics

Belinda J. McClaren
Erin Crellin
Monika Janinski
Amy E. Nisselle
Larissa Ng
Sylvia A. Metcalfe
Clara L. Gaff

Frontiers in Genetics

doi 10.3389/fgene.2020.00151

7,332 views
44 citations

Policy and Practice Reviews

Published on 20 Dec 2019

Regulating the Secondary Use of Data for Research: Arguments Against Genetic Exceptionalism

in ELSI in Science and Genetics

Andrea Martani
Lester Darryl Geneviève
Christiane Pauli-Magnus
Stuart McLennan
Bernice Simone Elger

Frontiers in Genetics

doi 10.3389/fgene.2019.01254

18,807 views
22 citations

Original Research

Published on 20 Dec 2019

The African Genomic Medicine Training Initiative (AGMT): Showcasing a Community and Framework Driven Genomic Medicine Training for Nurses in Africa

in ELSI in Science and Genetics

Victoria Nembaware
African Genomic Medicine Training Initiative
Nicola Mulder
Omar Abidi
MB Akanle
Stuart Alvaro Ali
Cliff Asher Aliga
Paballo Chauke
Minnet Cotzee
Collet Dandara

Frontiers in Genetics

doi 10.3389/fgene.2019.01209

12,375 views
26 citations

Brief Research Report

Published on 17 Dec 2019

Using the Findings of a National Survey to Inform the Work of England’s Genomics Education Programme

in ELSI in Science and Genetics

Siobhan Simpson
Anneke Seller
Michelle Bishop

Frontiers in Genetics

doi 10.3389/fgene.2019.01265

3,793 views
10 citations

Original Research

Published on 13 Dec 2019

Conversations Surrounding the Use of DNA Tests in the Family Reunification of Migrants Separated at the United States-Mexico Border in 2018

in ELSI in Science and Genetics

Jennifer K. Wagner
Diana Madden
Valedie Oray
Sara H. Katsanis

Frontiers in Genetics

doi 10.3389/fgene.2019.01232

7,071 views
5 citations

Original Research

Published on 21 Nov 2019

Informing Integration of Genomic Medicine Into Primary Care: An Assessment of Current Practice, Attitudes, and Desired Resources

in ELSI in Science and Genetics

June C. Carroll
Judith Allanson
Shawna Morrison
Fiona A. Miller
Brenda J. Wilson
Joanne A. Permaul
Deanna Telner

Frontiers in Genetics

doi 10.3389/fgene.2019.01189

6,279 views
47 citations

Brief Research Report

Published on 13 Nov 2019

Genomic Education at Scale: The Benefits of Massive Open Online Courses for the Healthcare Workforce

in ELSI in Science and Genetics

Michelle Bishop
Edward Miller
Amelia McPherson
Siobhan Simpson
Stuart Sutherland
Anneke Seller

Frontiers in Genetics

doi 10.3389/fgene.2019.01094

3,894 views
3 citations

Original Research

Published on 12 Nov 2019

Scoping the Scene: What Do Nurses, Midwives, and Allied Health Professionals Need and Want to Know About Genomics?

in ELSI in Science and Genetics

Mona Saleh
Romy Kerr
Kate Dunlop

Frontiers in Genetics

doi 10.3389/fgene.2019.01066

4,423 views
10 citations

Navigation group

Articles

Public Attitudes Toward Precision Medicine: A Nationwide Survey on Developing a National Cohort Program for Citizen Participation in the Republic of Korea

How Can We Not Waste Legacy Genomic Research Data?

Causal Attributions in an Australian Aboriginal Family With Marfan Syndrome: A Qualitative Study

Genomic Sequencing Capacity, Data Retention, and Personal Access to Raw Data in Europe

Genetic Privacy and Data Protection: A Review of Chinese Direct-to-Consumer Genetic Test Services

German and Italian Users of Web-Accessed Genetic Data: Attitudes on Personal Utility and Personal Sharing Preferences. Results of a Comparative Survey (n=192)

Pioneering Informed Consent for Return of Research Results to Breast Cancer Patients Facing Barriers to Implementation of Genomic Medicine: The Kenyan BRCA1/2 Testing Experience Using Whole Exome Sequencing

Development of an Evidence-Based, Theory-Informed National Survey of Physician Preparedness for Genomic Medicine and Preferences for Genomics Continuing Education

Preparing Medical Specialists for Genomic Medicine: Continuing Education Should Include Opportunities for Experiential Learning

Regulating the Secondary Use of Data for Research: Arguments Against Genetic Exceptionalism

The African Genomic Medicine Training Initiative (AGMT): Showcasing a Community and Framework Driven Genomic Medicine Training for Nurses in Africa

Using the Findings of a National Survey to Inform the Work of England’s Genomics Education Programme

Conversations Surrounding the Use of DNA Tests in the Family Reunification of Migrants Separated at the United States-Mexico Border in 2018

Informing Integration of Genomic Medicine Into Primary Care: An Assessment of Current Practice, Attitudes, and Desired Resources

Genomic Education at Scale: The Benefits of Massive Open Online Courses for the Healthcare Workforce

Scoping the Scene: What Do Nurses, Midwives, and Allied Health Professionals Need and Want to Know About Genomics?